Butterfly grew up with food intolerances and was diagnosed with ADHD, Asperger's
Syndrome, and learning difficulties. Now she struggles with OCDs.
This is the story of how we have faced these challenges.

Resources

I covered Feingold's books on the blog.  Just a reminder here.

ChickiePea on FB:  http://www.facebook.com/notifications.php#!/pages/Chickie-Peas-blog-Eating-for-Autoimmune-Health/259835828602
or, the more direct route to her blog:  http://www.chickiepea.wordpress.com/
This mom is living it and blogging it.  She's an inspiration to others who have to deal with food intolerances and behavioural problems in their children.

I included this on the Recipes page, but should have it here too:  gluten free girl by Shawna James Ahern
 http://glutenfreegirl.blogspot.com/   I borrowed a copy from the local library and had to give it back before I was done with it, but I've seen enough to know I'm going to buy it. 

One of the most inspiring books I read while raising Butterfly was, Free To Fly, by Judit Rajhathy.  I looked it up to see if it was still in print, and indeed there is a revised version.  You can check it out of this site, which has other allergy/health related resources as well.  Page down for Judit's book:  http://www.allergy-details.com/general/books-about-promoting-health/

A Consumer’s Dictionary of Food Additives
by Ruth Winter, M.S.

Now, I read the updated 4th edition printed in 1994, but I see there's now a seventh edition.  Go Ruth!  This dictionary is very informative about just what's in those ingredients used to increase shelf life, enhance flavour, etc. and how they impact our health.  http://www.randomhouse.com/catalog/display.pperl?isbn=9780307452597&view=excerpt 

Additive Alert: What have they done to our food? A Consumer's Action Guide
Published 1994
This is the fourth edition to date - a comprehensive look at the additives in and on our food. Includes current information on pesticide residues, packaging chemicals and veterinary drugs (320 pages).  You can order this report on this web site, page down:  http://www.pollutionprobe.org/Publications/Toxic.htm 

This one is not a health resource, but an educational one:  http://www.enchantedlearning.com/Home.html 
This site has maps, colouring pages, information on animals, artists, geography, weather anomolies, plants, planets, solar systems and so much more.  I could not have homeschooled Bud without this site.  If you need some homework help for the kidlet, this is a great place to get it.

http://autismcharity.co.cc/2010/07/26/characteristics-of-high-functioning-autism/
The differences between high-functioning autism and Asperger's Syndrome are nebulous.  Is my Aspie really an Aspie?

http://pikibook.com/herbs-can-help-allergies-for-children-with-autism?utm_source=twitterfeed&utm_medium=twitter
Autism, allergies, and herbs ~ information

http://www.essential-guide-to-autism.com/autism.html?hop=alex1591
Essential Guide to Autism.. they say.

http://www.trcb.com/health-and-fitness/autism/aspergers-syndrome-a-part-of-the-autism-spectrum-1009.htm
All about Asperger's Syndrome

Leaky Gut Syndrome Information:  http://www.leakygut.co.uk/
http://www.allergyescape.com/leaky-gut-syndrome.html

On learning disabilities:  http://www.brighttots.com/Learning_disability.html 

Outward Bound Canada:  http://www.outwardbound.ca/default.asp 

Outward Bound U.S.:  http://www.outwardbound.org/

Ok, as I said on my last blog post, obviously this is not Butterfly's entire life story, but I've tried to give examples and an overview that's expressive of her life growing up, in a way that will be helpful to those seeking resources.  There are others who can offer insights, including parents still struggling with raising a child with challenges.  These good people blog, tweet or write articles about it their experiences.  I have already given ChickiePea's blog above and others are:

Aspie Brit's blog:  http://aspiebrit.blogspot.com/  Some honest, insightful blogs about being an Aspie all grown up.  @AspieBrit on Twitter

My Life as an Ungraceful, Unhinged, and Unwilling Draftee into the Autism Army by Lynn Hudoba:  http://www.autismarmymom.com/   Great blog, written with humour and love.  @autismarmymom on Twitter

Amalia Starr article on raising an autistic son:  http://ezinearticles.com/?What-I-Learned-While-Raising-My-Thirty-Seven-Year-Old-Autistic-Son&id=4735928

Amalia's web page:  http://www.amaliastarrspeakerautism.com/    @AutismMomExpert on Twitter

Stuart Duncan, autism from a father's point of view:  http://www.stuartduncan.name/   @autismfather on Twitter

http://diannaagain.wordpress.com/  Kickin' Asperger's

@kicknthespectrm on Twitter

http://littlebitquirky.blogspot.com/2010/08/bathroom-madness.html?utm_source=feedburner&utm_medium=twitter&utm_campaign=Feed%3A+LittleBitQuirky+%28Little+Bit+Quirky%29&utm_content=Twitter   @littlebitquirk on Twitter

Momma Be Good  http://mamabegood.blogspot.com/2010/08/from-bottom-to-brain.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+MamaBeGood+%28Mama+Be+Good%29&utm_content=Twitter 

@Appleshoelace on Twitter has a blog too, called Aspects of Aspergers: http://aspectsofaspergers.wordpress.com/

World of Autism:  http://www.worldofautism.com/

Autism Speaks Family Services Resources:  http://www.autismspeaks.org/community/resources/index.php
for Americans.  @autismspeaks on Twitter

@autismtoday on Twitter daily lists resources, some of which are given here.  You may wish to follow for more.

Autism Women's Network: http://autismwomensnetwork.org/forum/coming-out-finally-lol-newbie#comment-4797  This is one blog post by a mom of an Aspie, who has just realized she is Aspie too.  Navigate from there.

Ingrid Mane:  http://www.renegade-scholar.com/

Heather MacMillan:  http://manyskiesmama.blogspot.com/

Jo Brown:  http://www.cyfaill.blogspot.com/

Thinking of homeschooling?  http://www.specialneedshomeschool.com/ 

I will continue to add to this page as I remember or check on resources, but be aware that this page is by no means intended as a complete list of available resources for parents of special kids.  The thing is though, many of these resources themselves include links to other important resources, hence creating a moving train of information and support for any parents who want to climb on.

1 comment:

  1. I have to check out those books!
    Here is a direct link to my blog if you want:
    www.chickiepea.wordpress.com but finding me via facebook works too :) Thanks for linking to me. I need a links page on my blog- will get to that very soon!!

    ReplyDelete